NorCal families, especially those with new TSC babies! I want to alert you to this important new study that's enrolling for TS babies younger than 6 months with NO history of seizures. This is to test preventative treatment with vigabatrin (Sabril) BEFORE the onset of seizures. This work could be truly transformative in TSC treatment, especially as more of our babies are being diagnosed in utero. Northern California's trial location is at Stanford. Please email firstname.lastname@example.org or call 650-721-1458 for more information. What I would have given to be able to get my Allison into a trial like this! Love with Danger in the Purple: Being Beloved by the Hardhearted Avenger
PLEASE let any newly diagnosed families you may encounter know about this important opportunity. There are multiple locations enrolling around the country. Stanford's helpful staff can put you in touch with the other locations as needed.